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Registered charity no: 1098918
 
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The Trust has been established to raise funds for research into the treatment of Late Infantile Battens – also known as CLN2.

The development of therapies will directly benefit 500 children that are diagnosed with this devastating disease throughout the world and be a potential cure for around another 40 genetic disorders, saving the lives of thousands of children.

Jordan’s compelling story is what inspired us to establish the Jordan Jay Trust.